Update on how #Fibromylagia has changed my life

30 Things About My Invisible Illness You May Not Know!

Back in September, 2010, I wrote a post about how Fibromyaglia changed my life.  I thought it would be fun to see how things are going since then.

  1. The illness I live with is: Fibromyalgia
  2. I was diagnosed with it:  I was diagnosed with fibro over 15 years ago when I was in my teens.
  3. But I had symptoms since: Childhood
  4. The biggest adjustment I’ve had to make is: Not caring about what people think or say – It’s their problem if they don’t understand.
  5. Most people assume:  I am lazy or just don’t want to do anything.
  6. The hardest part about mornings are:  Getting up because no matter what time I go to sleep, I wake up feeling like I got no sleep.  Unfortunately, I can’t just lay around in bed until I feel better because I now have a 2 1/2 year old.
  7. My favorite medical TV show is:  Grey’s Anatomy
  8. A gadget I couldn’t live without is:  Computer & Cell Phone
  9. The hardest part about nights are:  Falling asleep
  10. Each day I take __ pills & vitamins. Between morning and night, I take 15 pills and supplements a day
  11. Regarding alternative treatments I: Have massages once a month
  12. If I had to choose between an invisible illness or visible I would choose:  Neither!  But, for the sake of this question, I’ll say invisible.  I don’t want my medical issues to be the focus of who I am.
  13. Regarding working and career: I honestly think Fibro was a blessing in disguise because I was able to find something I really love doing, I love getting up every morning and working, I love working from home and raising my son.  I don’t miss the corporate world at all and having that stress of “When am I going to get fired?”
  14. People would be surprised to know:  Some of my symptoms.  Who would of thought at 36 years old I would be having hot flashes :(
  15. The hardest thing to accept about my new reality has been:  That some days, no matter how hard I fight, I still need help and that I can’t do everything.  I am a control freak!
  16. Something I never thought I could do with my illness that I did was:  Start a blog and try to help people who suffer from this disease or help people that want to learn more about Fibro.
  17. The commercials about my illness:  Are ok.  I wish they would use younger people some time because it does affect us as well as older people.
  18. Something I really miss doing since I was diagnosed is:  Have energy to be more active.
  19. It was really hard to have to give up:  A lot of things
  20. A new hobby I have taken up since my diagnosis is:  Blogging
  21. If I could have one day of feeling normal again I would:  Get so much done!
  22. My illness has taught me:  Too many things to list!  Patience, compassion, and understanding and that some people just don’t care and don’t want to take the time to learn.  You know who your true friends are.
  23. Want to know a secret? I hate when people give me attitude because I may not be able to do something.
  24. But I love it when people:  Take the time to learn about fibro and just call to see how I am doing.
  25. My favorite motto, scripture, quote that gets me through tough times is:  Kill them with kindness.
  26. When someone is diagnosed I’d like to tell them:  I am here to help you get through it.
  27. Something that has surprised me about living with an illness is:  Who is there to support you and who isn’t (family and friends)
  28. The nicest thing someone did for me when I wasn’t feeling well was:  my husband will cook me dinner.
  29. I’m involved with Invisible Illness Week because:  It’s my personal mission to help others who live with these conditions live a better life as well as educate.
  30. The fact that you read this list makes me feel:  Awesome beyond belief.

Please do this list yourself and comment on this post.  Makes you think.

About Michelle Arbore

I am 36 years old, married for 8 years and have an almost 3 year old, Michael Richard. We also have two cats (Anibel & Mama). I own my own social media management and coaching business that allows me to work from home. I like to read, listen to music, take photos, learn new things, shop, watch TV and spend time with family and friends. I also suffer from Fibromyalgia. I have suffered from this disease for over 15 years now. I started my blog so I could have a place to vent about what I am feeling. It has turned into a place where I post information about this disease, talk about books that I am reading about Fibro, and getting to meet other people who suffer from this.
This entry was posted in Chronic Fatigue, Chronic Pain, Depression, Diet, Exercise, Fatigue, Fibro, Fibro Fog, Fibromyalgia, Gluten-Free, Invisible Illness, Medicine, Memory Problems, Stress and tagged , , , , , , , , , , , , , , , , , . Bookmark the permalink.

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