From the National Fibromyalgia & Chronic Pain Association
JOIN YOUR VOICE WITH 100,000 OTHERS & Take the Fibromyalgia Survey for the Upcoming FDA Public Fibromyalgia Patient-Focused Meeting
The Food and Drug Administration has scheduled a public meeting at their Silver Springs, Maryland offices on December 10, 2013, specifically to learn more about fibromyalgia. They will listen to patient testimonies to determine what other symptoms besides pain most affect the lives of people living with this condition and which treatments are most successful.
The meeting room holds 150 audience members along with another 14 patient representatives who will sit on a panel to present personal testimonies about living with fibromyalgia. The registration list to attend the meeting is now full, but the NFMCPA wants to include your responses to educate the FDA about the numerous perplexities of living with this condition. To help address this issue and include more testimony from the people who live with fibromyalgia, the NFMCPA worked in conjunction with Dr. Robert Bennett at the Oregon Health and Science University to create a survey to address specific fibromyalgia questions posed by the FDA. This survey does not identify the people who responded.
This survey is your opportunity to educate the FDA about the following issues:
* What three fibromyalgia symptoms most adversely affect your life?
* How do fibromyalgia symptoms impact your quality of life?
* What current treatments work or do not work to help you feel better?
* Which alternative, non-medication treatments are the most beneficial in relieving your symptoms ?
* Which prescription medications are beneficial in relieving your symptoms?
* Is a combination of prescription medications and alternative approaches beneficial in relieving your symptoms?
As one of the panel members giving testimony on December 10th, Jan Chambers, a person with fibromyalgia and President of the NFMCPA, will represent the voices of the NFMCPA’s 100,000+ constituents. She will incorporate the analysis of survey results into her presentation as well as submit the full survey findings to the FDA. Since survey numbers are important in representing millions of people, the more of you who take this survey, the better. It is also the intention of the NFMCPA and Dr. Bennett to create a future published research paper based on the results of this survey.
Thank you for being willing to participate in this survey and have your voice heard. The survey takes between 20 and 30 minutes to complete. The survey is scheduled to close December 6, 2013.