30 Things About My Invisible Illness You May Not Know! #blogboost

  1. The illness I live with is: Fibromyalgia
  2. I was diagnosed with it in the year:  I was diagnosed with fibro over 15 years ago when I was in my teens.
  3. But I had symptoms since: Childhood
  4. The biggest adjustment I’ve had to make is: Not being able to do and go everywhere, not caring about letting people down and taking care of myself first.
  5. Most people assume:  That I don’t have daily struggles, I can be sick one day and fine the next so she must be lying or is lazy.
  6. The hardest part about mornings are:  Actually getting up.  I always feel so tired no matter how much sleep I get.
  7. My favorite medical TV show is:  Grey’s Anatomy
  8. A gadget I couldn’t live without is:  Computer
  9. The hardest part about nights are:  Relaxing because that is when I start to feel the pain.  I also have such a hard time falling asleep.
  10. Each day I take __ pills & vitamins. Between morning and night, I take 10 pills a day
  11. Regarding alternative treatments I: Do massage therapy
  12. If I had to choose between an invisible illness or visible I would choose:  Neither!  But, for the sake of this question, I’ll say invisible.  I don’t want my medical issues to be the focus of who I am.
  13. Regarding working and career: Because I couldn’t hold a job, I own 3 businesses which allows me to be able to work from home
  14. People would be surprised to know:  Some of my symptoms.  I am learning so much as I am getting older.  Who would of thought at 34 years old I would be having hot flashes :(
  15. The hardest thing to accept about my new reality has been:  That some days, no matter how hard I fight, I still need help and that I can’t do everything.
  16. Something I never thought I could do with my illness that I did was:  Start a blog and try to help people who suffer from this disease or help people that want to learn more about Fibro.
  17. The commercials about my illness:  Are ok.  I wish they would use younger people some time because it does affect us as well as older people.
  18. Something I really miss doing since I was diagnosed is:  Have energy to be more active.
  19. It was really hard to have to give up:  A lot of things
  20. A new hobby I have taken up since my diagnosis is:  Blogging
  21. If I could have one day of feeling normal again I would:  Get so much done!
  22. My illness has taught me:  Too many things to list!  Patience, compassion, and understanding and that some people just don’t care and wont take the time to learn.
  23. Want to know a secret? I hate when people give me attitude because I may not be able to do something.
  24. But I love it when people:  Take the time to learn about fibro.
  25. My favorite motto, scripture, quote that gets me through tough times is:  Kill them with kidness
  26. When someone is diagnosed I’d like to tell them:  I am here to help you get through it.
  27. Something that has surprised me about living with an illness is:  Who is there to support you and who isn’t (family and friends)
  28. The nicest thing someone did for me when I wasn’t feeling well was:  my husband will cook me my favorite – Lipton Soup with egg.
  29. I’m involved with Invisible Illness Week because:  It’s my personal mission to help others who live with these conditions live a better life as well as educate.
  30. The fact that you read this list makes me feel:  Awesome beyond belief.

About Michelle Arbore

I am 36 years old, married for 8 years and have an almost 3 year old, Michael Richard. We also have two cats (Anibel & Mama). I own my own social media management and coaching business that allows me to work from home. I like to read, listen to music, take photos, learn new things, shop, watch TV and spend time with family and friends. I also suffer from Fibromyalgia. I have suffered from this disease for over 15 years now. I started my blog so I could have a place to vent about what I am feeling. It has turned into a place where I post information about this disease, talk about books that I am reading about Fibro, and getting to meet other people who suffer from this.
This entry was posted in Chronic Fatigue, Chronic Pain, Depression, Diet, Exercise, Fatigue, Fibro, Fibro Fog, Fibromyalgia, Gluten-Free, Medicine, Memory Problems, Stress and tagged , , , , , , , , , , , , , , , , , . Bookmark the permalink.

11 Responses to 30 Things About My Invisible Illness You May Not Know! #blogboost

  1. Lynn says:

    Great blog! I’m going to share this with friends plus I think I may have it since I meet alot of the symptoms and am only 29! Going to a DR in a few weeks to get this checks…joint pain is a common symptom right?

  2. Learning. Illness has so many faces — yet, we’re alive and doing the best we can :)

  3. Pingback: In case you missed it!

  4. Rita Kunnan says:

    Hey Michelle,

    I was completely clueless about Fibromyalgia until I hit upon your blog today. I’ve done some reading now and understand how difficult it would be for you to live life on a daily basis. I really appreciate your strength of character as you say that you do not want your medical issues to be the focus of who you are. It’s wonderful for you to come up with this blog to educate people and help those who are already suffering with this medical condition.

    I wish you all the happiness, health and energy.
    God Bless!!!

  5. Karyn18 says:

    I just don’t know what to say. But what is it’s cause that you have this? I don’t barely understand your illness. Hoping that I’ll learn more and I’ll be searching. I know you’ll be okay someday. Be fine.

    • Thank you Karyn for commenting. The doctor’s don’t know what causes Fibromyalgia and took a long time to consider it a real medical condition. To explain it the easy way, it’s where your whole body just hurts – muscles and joints, migraines, sweating, hard to sleep, etc. You should look at the information I posted and maybe you will learn more about Fibromyalgia.

  6. Jillian Snyder says:

    I’ve only read or heard of Fibromyalgia, but I really didn’t know anything about it until today. Thank you for sharing this and for educating people who, like me, had no idea about this type of illness.

    • Thank you Jillian. I am glad I can educate people that know nothing about Fibromyalgia. That is why I started this blog over 2 years ago now. I hope you can share this with other people because you never know who has this. Some people suffer in silence because they are scared and not educated themselves.

  7. Linda Luke says:

    Thank you for bringing this forward. I am going to share your blog with a couple people I know who have similar struggles.

Leave a Reply

Your email address will not be published. Required fields are marked *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>