Fibro Changed My Life!

I got this idea from fibrogirlkate.  I liked it so much so I thought I would take her lead and complete my list. 

30 Things About My Invisible Illness You May Not Know!

  1. The illness I live with is: Fibromyalgia
  2. I was diagnosed with it in the year:  I was diagnosed with fibro over 15 years ago when I was in my teens.
  3. But I had symptoms since: Childhood
  4. The biggest adjustment I’ve had to make is: Not being able to do and go everywhere, not caring about letting people down and taking care of myself first.
  5. Most people assume:  That I don’t have daily struggles, I can be sick one day and fine the next so she must be lying or is lazy.
  6. The hardest part about mornings are:  Actually getting up.  I have such a hard time waking up because I take an anxiety pill and a muscle relaxer at night, plus I am up till 2 or 3 in the morning.  If I make plans or appointments, they are after 10 or 11 am.
  7. My favorite medical TV show is:  Grey’s Anatomy
  8. A gadget I couldn’t live without is:  Computer
  9. The hardest part about nights are:  Relaxing because that is when I start to feel the pain.  I also have such a hard time falling asleep.
  10. Each day I take __ pills & vitamins. Between morning and night, I take 10 pills a day
  11. Regarding alternative treatments I: Do massage therapy and am looking into acupuncture.
  12. If I had to choose between an invisible illness or visible I would choose:  Neither!  But, for the sake of this question, I’ll say invisible.  I don’t want my medical issues to be the focus of who I am.
  13. Regarding working and career: I can’t seem to keep a job so I work from home with Mary Kay, web design and am just starting my virtual assistant company.
  14. People would be surprised to know:  Some of my symptoms.  I am learning so much as I am getting older.  Who would of thought at 32 years old I would be having hot flashes :(
  15. The hardest thing to accept about my new reality has been:  That some days, no matter how hard I fight, I still need help and that I can’t do everything.
  16. Something I never thought I could do with my illness that I did was:  Start a blog and try to help people who suffer from this disease or help people that want to learn more about Fibro.
  17. The commercials about my illness:  Are ok.  I wish they would use younger people some time because it does affect us as well as older people.
  18. Something I really miss doing since I was diagnosed is:  Have energy to be more active.
  19. It was really hard to have to give up:  A lot of things
  20. A new hobby I have taken up since my diagnosis is:  Blogging
  21. If I could have one day of feeling normal again I would:  Get so much done!
  22. My illness has taught me:  Too many things to list!  Patience, compassion, and understanding and that some people just don’t care and want to take the time to learn.
  23. Want to know a secret? I hate when people give me attitude because I may not be able to do something.
  24. But I love it when people:  Take the time to learn about fibro.
  25. My favorite motto, scripture, quote that gets me through tough times is:  Kill them with kidness
  26. When someone is diagnosed I’d like to tell them:  I am here to help you get through it.
  27. Something that has surprised me about living with an illness is:  Who is there to support you and who isn’t (family and friends)
  28. The nicest thing someone did for me when I wasn’t feeling well was:  my husband will cook me my favorite – Lipton Soup with egg.
  29. I’m involved with Invisible Illness Week because:  It’s my personal mission to help others who live with these conditions live a better life as well as educate.
  30. The fact that you read this list makes me feel:  Awesome beyond belief.

Please do this list yourself and comment on this post.  Makes you think.

About Michelle Arbore

I am 36 years old, married for 8 years and have an almost 3 year old, Michael Richard. We also have two cats (Anibel & Mama). I own my own social media management and coaching business that allows me to work from home. I like to read, listen to music, take photos, learn new things, shop, watch TV and spend time with family and friends. I also suffer from Fibromyalgia. I have suffered from this disease for over 15 years now. I started my blog so I could have a place to vent about what I am feeling. It has turned into a place where I post information about this disease, talk about books that I am reading about Fibro, and getting to meet other people who suffer from this.
This entry was posted in Chronic Fatigue, Chronic Pain, Depression, Diet, Exercise, Fatigue, Fibro, Fibromyalgia, Medicine, Memory Problems, Stress and tagged , , , , , , , , , , , , , , . Bookmark the permalink.

2 Responses to Fibro Changed My Life!

  1. Pingback: Update on how #Fibromylagia has changed my life

  2. Gentle Nurse says:

    Thank you for doing this blog. I have friends with fibromyalgia and I don’t really understand much about it. I might have gluten sensitivity, am being tested at this time. Does fibro relate to eating certain foods especially, is there any clarity as to what causes it? One of my friends is very young, 26, single, is very slowed down, sluggish, can hardly be bothered any more, sits at her computer all day, hurts all the time, and I feel so sad for her. Glad there are blogs to help me understand her situation better. G.N.

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